You want to hear a (not-so-secret) secret? I don’t want to tell you about my Crohn’s disease right now. I know it’s Crohn’s and Colitis Awareness Week. I know that I want you to be aware. I know that, deep down, I am committed to talking about Crohn’s and colitis and that it is rewarding to share and helps us get closer to that cure we’re all waiting for.
But the truth is, I’m sick of talking about IBD.
I’m sick of talking about anemia and ulcers and poop and shit and stool. Stool. I’m especially sick of the word stool. It’s a useless word unless you are describing something to sit upon, like a bar stool or a stool at your workbench. But otherwise, stool is such a sterile word and poop is just so…not sterile.
I’m sick of talking about low residue diets and fiber and dietary restrictions. It’s December and all I want to talk about is Christmas cookies and eggnog and Secret Santa. I really don’t want to tell you what an ostomy is while having cookies and eggnog. I really don’t want to wonder whether the cookies and eggnog are going to give me, or other IBD-afflicted friends, diarrhea. I really don’t even want to use the word diarrhea in public.
But I’m going to keep putting all these words out there. Even when I don’t feel like it, I’m going to tell you about it. Because I don’t do this for fun (though parts of it are fun, including the running). I do this because IBD sucks. I do it because I know too many people with Crohn’s and colitis and I want them to be able to stop worrying about it.
I want to stop talking about IBD, I really do. The only words I want to hear in relation to Crohn’s and colitis are along the lines of “hey, remember when we used to have Crohn’s disease? I do not miss those Remicade infusions. I’m so grateful to be cured.”
But to get to that cure, we have to keep talking about IBD. We have to talk about shit and diets and medications and blood and needles and pain and narcotics and support groups. And we need to do what we can to help find a cure and to provide support to patients until that cure is available.
Beth and I designed these really awesome Christmas ornaments to sell this week to raise money for CCFA, and, honestly, I haven’t been doing my fair share of the work to sell them these past few days. And it’s simply because I’m tired of Crohn’s and colitis. If you’re as sick of these diseases as I am, even 10% as sick of them as I am, I hope you’ll consider purchasing one to bring us closer to a cure. I promise that, once we’re all cured, you’ll hear a lot less about IBD from me and a lot more about cookies and salads and whatever new hobby I suddenly have time for, maybe basket weaving or sky diving or letterpress printing or SCUBA…probably travel. And I really do believe we’re close to a cure. So, here’s what the ornaments look like and how to order:
Are you sick of talking about, hearing about, or having IBD? Please feel welcome to vent your frustrations in the comments.